Archive for August, 2017|Monthly archive page

Some links related to Brain machine interfaces and Elon Musks Neuralink company

In Uncategorized on August 28, 2017 at 5:55 pm

Elon Musk’s Neuralink company also here on facebook and an article on Neuralink  (really in my mind beside the point whether he raises outside money or not, the vision of Neuralink is the topic)    see also here and  here. We published various pieces on BCI as they relate to disabled people (list of publications in general from us here. ) Cheers Gregor

Transhumanism: The final chapter in humanity’s perpetual quest to be kitted out in comforting accessories

In Uncategorized on August 27, 2017 at 12:48 am

article here

So much left unsaid in the article

Australians can be denied life insurance based on genetic test results, and there is little protection

In Uncategorized on August 24, 2017 at 8:15 pm

see here

Our group published various pieces over the years questioning the asymptomatic versus symptomatic divide in Anti-genetic discrimination laws. Latest one as part of a paper discussion gene-editing  Discussions around Precision Genetic Engineering: Role of and Impact on Disabled People  where we cover the Canadian Genetic Anti discrimination law from last year, how the EU deals with some issues and where we also refer back to older things such as the US approach in Wolbring, G (2004) “Disability rights approach to genetic discrimination” in “Society and Genetic” Information: Codes and Laws in the Genetic Era edited by Judit Sandor CPS books Central European University Press ISBN: 963924175X

Iceland close to becoming first country where no Down’s syndrome children are born.

In Uncategorized on August 16, 2017 at 5:30 pm

link here

Would have been nice if they would have given some numbers what it was before tests.

Also  this line of reasoning ““This is your life. You have the right to choose how your life will look like.”  has vast implications beyond genetic tests and termination of pregnancies  to how we deal with genetic modifications and other modifications of a child or child to be. Which ability expectations will be used to make a case that it impacts ones life too much if no action is taken? And how much will societies behavior lead to the belief that the impact on ones life is to great? How much will an increase of not being responsible for each other as members for society to enable a good life for each other impact the actions to come? For  recent piece on ability expectation governance see here  and a piece on the discourse around disabled people and gene editing from my group see here.



A small piece out in The Conversation, Canada edition

In Uncategorized on August 12, 2017 at 2:05 pm

Why “ability expectations” must be central to debates on science and our future The Conversation, Canada

News item: Human embryo editing breakthrough is a ‘major advance’ towards controversial treatments for babies

In Uncategorized on August 2, 2017 at 5:57 pm

Well we will see whether its a major advance but the wide scope beyond ‘disease’ is evident in this part “Though the scientists only edited out mutations that could cause diseases, it modified the nuclear DNA that sits right at the heart of the cell that also influences personal characteristics such as intelligence, height, facial appearance and eye colour.”

Consequences fit with the Ability studies scope of the WolbPack and our work on genetics and other linked areas. Cheers Gregor

link to the article